I begin my broken-story narrative on February 10, 2014–the day my son, Titus, had a seizure. What followed was a massive and swift wave that rocked our lives hard between fear, anger, mystery and defeat.
April 7, 2015, Titus was diagnosed with a rare, genetic, and fatal disease. The doctor had no treatment he could prescribe, no cure in sigh. We were going to lose our boy. And worse yet, our youngest son, Ely, was also in danger of having the disease. We were encouraged to get him tested as well.