Before my son passed away, I spent almost every night hunched over his medical bed, checking to make sure his feeding tube was working correctly, adjusting his body in the darkness, rolling him on his side so he wouldn’t choke on his saliva.
This was my nightly medical drill as the parent of a child with a rare disease. My son was dying and the weight of that reality meant I did everything to keep him alive while praying for a miracle.
But what happens when there is no miracle? No immediate healing? No answer in the long darkness?