What happens when there is no miracle?
Loss

What happens when there is no miracle?

Before my son passed away, I spent almost every night hunched over his medical bed, checking to make sure his feeding tube was working correctly, adjusting his body in the darkness, rolling him on his side so he wouldn’t choke on his saliva.

This was my nightly medical drill as the parent of a child with a rare disease. My son was dying and the weight of that reality meant I did everything to keep him alive while praying for a miracle.

But what happens when there is no miracle? No immediate healing? No answer in the long darkness?

How to Bloom with Joy in the Midst of Brokenness
Loss

How to Bloom with Joy in the Midst of Brokenness

I begin my broken-story narrative on February 10, 2014–the day my son, Titus, had a seizure. What followed was a massive and swift wave that rocked our lives hard between fear, anger, mystery and defeat.

April 7, 2015, Titus was diagnosed with a rare, genetic, and fatal disease. The doctor had no treatment he could prescribe, no cure in sigh. We were going to lose our boy. And worse yet, our youngest son, Ely, was also in danger of having the disease.  We were encouraged to get him tested as well.  

The End.

The End.